| CMCH Synopsis: |
Video Intervention/Prevention Assessment (VIA) has explored young people's experiences with asthma, obesity, sickle-cell disease, cystic fibrosis, HIV, and spina bifida through patient created video narratives. Video media provides young people with the opportunity to express their viewpoint of living with chronic conditions including insights into their emotional and psychological state. It also provides clinicians with information about social and environmental factors influencing disease management. Participants videotape their everyday activities, the environments in which they occur, and interviews with family and friends. Challenges have been maintaining motivation and interest in the project to continue videotaping. Existing analyses were insufficient for reviewing the narratives, so a technique was developed which logs objective and subjective visual and audio content in detail. The visual narratives have revealed information about young people's physical environments, perspectives on health care, experiences in hospitals, family structures and relationships, compliance with medication, psychological stressors, fears of death, self-esteem, depression, and social pressures to fit in. Participation in VIA helped young people become more observant of their lifestyle choices and disease management strategies. VIA advances health literacy through media literacy by using the narratives to expand communication between patients and clinicians. VIA has the potential to readjust the clinician-patient power dynamic by providing patients a new voice for self-advocacy and offering clinicians information that can help them better tailor disease management strategies to a patient's unique circumstances and needs. © Center on Media and Child Health
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